Holiday horror: how meningitis caught me off guard

Stephens story begins the summer of 2018. He had felt unwell prior to a weeks holiday in Portugal, not sick, just not quite right. Three days into the holiday his youngest daughter fell ill, they accepted it as a holiday bug and tried to get on with things as best as they could. Fortunately she…

World Meningitis Day

It’s year two of us advocating world meningitis day, and not far away from the three year anniversary of Chris’s battle with meningitis World meningitis day works to spread awareness about the disease, so it can be caught early for a better survival rate and quality of life. As we know, meningitis can result in…

Surviving sepsis

Yemisi Rathmann fell sick with tonsillitis around 16th of December, 2017. Initially she just put it down to a really bad flu, despite the awful pain with swallowing. She finally went to the doctors on the 20th and got prescribed antibiotics which apparently would start working immediately. This unfortunately wasn’t the case. Her fever was…

Happy New Year!

Happy New Year everyone! Wow 2020! Time moves way too fast when you aren’t watching! I haven’t posted an update in a long time as there really isn’t that much to report. Meningitis isn’t a very exciting thing to write about, and there isn’t new information coming out all the time. It’s really about knowing…

October update

There’s not much to share again this month, there is always periods of stillness, where not much is happening, a slow period of no appointments, or just waiting. Chris has been referred to ENT specialists for chronic sinitus, but an appointment can take up to 6 months, in the mean time he has been taking…

September Update

Chris has been referred to ENT specialists for possible chronic sinusitis which was picked up on a recent MRI. This could explain his face pain, the the increase in head pressure when leaning foward, his snoring, and possibly the increase in head pain recently. He has been taking migradol suggested for treatment of chronic headaches…

August Update

Our neurology appointment has finally come! Yay! Chris was a little disheartened after the appointment, I think he was expecting more answers. The truth is, brain injuries are very difficult. If you have seen one brain injury, you have seen one brain injury. They are all different, person to person, injury to injury. What works…

2 year anniversary

Wow! Two years! Two years since meningitis changed our lives, our perspective, our outlook, our direction, all changed. A recent visit with Chris’s occupational therapist has shown us how far he has come since, and has also given us some direction for tests and treatment for the future. Looking back to March last year, Chris…

Fundraising for a cause

I want to talk about the different ways you can fundraise for a cause. This is also helpful for me to brainstorm as I would love to raise money for the meningitis foundation NZ in the future. Marathons/fun runs Competing in a marathon and getting others to sponsor you is a great way to raise…

Sensitive to smells?

It is well known that meningitis can take away or dull your sense of smell, and you can have sensory processing issues, like sensory overload, and light sensitivity, but being sensitive to smells is a less common problem. Chris plenty of times has had trouble eating certain foods, or being in the same room as…